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What are your rights to services?:
If you are disabled and you are assessed
as needing one of the services listed in section 2 of the Chronically
Sick and Disabled Persons Act 1970, your local authority has a duty to
make arrangements for the provision of the service. These services are:
Practical help in the home, eg
home help;
Providing or help in getting a
radio, television, library or similar recreational facilities;
Lectures, games, outings, or other
recreational facilities outside your home and any help needed to take
advantage of educational facilities;
Help with travelling to any of
these or similar activities;
Any adaptations, such as a ramp
or lift or special equipment needed in the home for greater
safety, comfort or convenience; this can even include building
an extra room on the ground floor;
Holidays;
Meals, either in the home or a
local centre;
A telephone, and any special equipment
necessary to use the phone, eg Minicom;
Your needs and local authority resources:
Local authorities may wish to refuse
or withdraw services because of a shortage of resources and their eligibility
criteria defining needs they will meet and services they will provide
may be very strict in consequence. Local authorities are entitled to have
regard to their resources in deciding how and to what level they will
provide services to meet identified needs, but the circumstances in which
a local authority may use its lack of resources as a reason for not providing
services at all are limited.
It is only where the law (in an Act)
requires a local authority to make an Assessment of a persons need
before deciding whether any services are required that it can take into
account of its own resources, and then only where the type of service
under consideration is such that an authority has to consider whether
it is necessary or not for a particular person. This applies to most services
under section 2 of the Chronically Sick and Disabled Persons Act 1970.
Resources cannot be taken into account
in deciding whether services are to be provided:
In cases where there is an absolute
duty to provide services which does not depend on a prior assessment
of individual need, eg services under s.117 of the Mental Health Act
1983;
In cases where a persons
circumstances fall within in an authoritys eligibility criteria
since the authority has thereby already decided that such needs call
for the provision of services;
Once an authority, as a result
of conducting an assessment has decided that a person has a need for
services - that is, once an authority has accepted that there is a
need, it may not use lack of resources as a reason not to provide
the services to meet those needs;
Where a person is at severe physical
risk if services are not provided.
Once services are provided, an authority
may not simply withdraw or reduce them (whether or not as a result of
introducing stricter eligibility criteria) without conducting a review
of the community care assessment of the person concerned.
Seek advice if you feel you are not
getting the services you need because of resource problems in the local
authority. Resources issues are repeatedly coming before the courts and
the above statement of the law may be subject to change.
Do you have to pay for your care?:
A local authority may charge for domiciliary
services ( ie services provided in the home) and other services in the
community (eg day centres) which it either provides or arranges for you.
You cannot be charged for services provided by the NHS, such as district
nurses. Many local authorities are introducing new or increased charges.
Each local authoritys charging policy for domiciliary and day care
is different, so what follows are general principles. (The government
is currently looking at ways of harmonising charges by authorities.)
The local authority has the power
to charge a reasonable amount for its services. However, it has a responsibility
to consider each persons case individually. They should provide
you with written details of how much you will be charged and a breakdown
of how this has been worked out, together with details of what to do if
you think you cannot afford the charge.
In deciding how much to charge you,
the local authority should take into account the amount you spend on meeting
your everyday needs as well as any extra costs you may have as a result
of your disability. For example, you may have extra costs for laundry,
extra fuel costs, transport, special diet, specially made shoes, extra
or warmer clothing and bedding, cleaning materials, painkillers; maybe
you pay for gardening or walking the dog. They should make sure you have
enough money for these things if you are charged for services.
Disability Living Allowance mobility
component should not be taken into account in assessing your income (s.73(14)
Social Security Contributions and Benefits Act 1992).
The local authority cannot charge:
Anyone (family, carer or friend)
other than the person using the service; they can only take into account
the income and capital of the service user when deciding how much
you should pay;
The parent or guardian for childrens
services if the child is under 16 and the parent or guardian is on
income support, working families tax credit, disabled persons
tax credit;
A young person aged between 16
and 18, on income support or income based JSA;
For services provided under section
117 of the Mental Health Act 1983.
If you cannot afford to pay the charge,
the local authority has a duty to decide how much you can afford to pay
and reduce the charge or not to charge you at all. A council may not however
say - if you do not pay we will not provide the service. It may also not
withdraw a service because someone has failed to pay the charge. This
is because the decision to meet a need is separate from and comes before
the decision whether to charge for the service.
However, they can use
debt enforcement proceedings, such as taking the individual to court,
for the recovery of arrears. Although many people are willing ( indeed,
prefer) to pay a reasonable amount if they are able to, some councils
are exacting charges from people living on income support or equally low
incomes. Also some councils have higher charges if you get Attendance
Allowance or Disability Living Allowance care component. You may be able
to show you already use this money for other essential spending. If you
cannot afford the charge, ask for it to be reduced or waived. For more
information on charging, see the materials produced by the Coalition
on Charging available from
MENCAP (see
Organisations Addresses, in the Main Index) - send a large
SAE.
you can complain about the amount
you are being charged and have your case heard by a review panel. Some
local authorities have a separate charges complaints procedure which is
shorter than the standard complaints described below.
If you are not satisfied with your care services:
Wherever possible problems should
be resolved locally, perhaps with the aid of a local councillor. Social
services departments must have a complaints procedure; most publish an
explanatory leaflet. Information regarding the action you can take if
you are unhappy about the assessment, or the services to be provided,
should be given at the same time of the care assessment and again when
you are informed of any charge. A social services complaints officer can
provide a copy of the complaints leaflet but it should be easily available
from your local office.
continued
on the next page
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