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Other sections on this site are concerned with improving independence, mobility and access. This section gives further information about specialist services and voluntary organisations for people with particular physical disabilities and medical conditions. The NHS There is a range of specialist NHS services which people with physical disabilities can obtain at local, regional and national level. These include help from continence advisers, rheumatologists, neurologists, dermatologists and rehabilitation consultants. Specialist rehabilitation services are available, for example, for people who have had strokes, head or spinal injuries, who have neurological or multiple disabilities and for young disabled adults. Regional Rehabilitation centres provide specialist services including spinal injuries units, rehabilitation engineering, communication aids, orthotics (splints) and artificial limbs. Your GP, therapist or community nurse can refer you on to specialist services, if necessary. The NHS Executive has also published a series of books for professionals and managers giving the users point of view on particular conditions, including: Incontinence, Eczema, Epilepsy, Dementia, Haemophilia, Multiple Sclerosis and Stroke; The Department of Health, PO Box 410, Wetherby LS23 7LN Voluntary organisations Disabled people can obtain a range of help and support from organisations dedicated to their particular disability. this site can only mention a selection of the larger national organisations most likely to have a branch in your area (see local phone book) and some national umbrella groups. For groups covering other disabilities, contact your GP or consultant, or NHS Direct on 0845 4647 The Directory for Disabled People has a detailed section on Helpful Organisations. This site does have most of the addresses mentioned in the directory (see Addresses). The Voluntary Agencies Directory has concise details or around 2,000 organisations, many relating to physical disability. (see Useful Information) Arthritis Care aims to promote the health, well-being and independence of people with arthritis through services, support, self-help, influence and information. It has over 650 branches and groups, 64,000 members, runs four specially equipped hotels and a national visiting service. It publishes a range of free leaflets and other publications. Arthritis Care also runs an information counselling service offering confidential support and information. Tel/text: 0207 916 1500 freephone Helpline: 0800 289 170 Young Arthritis Care is for people under 45 with arthritis. It has a nationwide network of over 80 contacts, all of whom are themselves young people with arthritis. ASBAH (The Association for Spina Bifida and Hydrocephalus) works to achieve equality of treatment in, education, employment, housing and many other areas for life and to improve awareness not only about the problems, but the potential of disabled people. Its range of services Include:
The British Polio Fellowship (BPF) supports people who have had polio, including those experiencing the late effects of polio. BPF provides details of health professionals with an interest in polio related problems, as well as information and advice on disability issues. Helpline: 0208 842 4999 Cancerlink provides emotional support and information to people with cancer, their families, friends and health professionals. It produces range of publications and acts as a resource for over 500 cancer support and self-help groups by offering training and development. Free Cancer Information Helpline 0800 132 905 Headway National Head Injuries Association Ltd is the leading national voluntary organisation for people with head injuries. Its mission is to promote understanding of all aspects of head injury and to provide information, support and services to people with head injury, their families and carers. Headway has over 100 support groups and 40 day care centres and produces a range of publications. Tel: 0115 924 0800 The Motor Neurone Disease Association brings together everyone connected in any way with MND - people with MND, professionals and carers. Its two priorities are the support of research and the provision of care to people affected by the disease. The National Office operates a comprehensive information service and publishes a magazine and information bulletins. Regional care Advisers are based in the community and give a service to both people with MND as well as having an education role. In addition, the Association can offer equipment on loan and make limited financial grants. An expanding branch of network volunteers enables people to find support and practical help locally. Tel: 01604 250 505; Helpline: 08457 626262 The Multiple Sclerosis Society aims to promote research into finding the cause of and a cure for MS: and to encourage people with MS to come together in mutual support. The Society campaigns to influence Government to improve everyday factors which affect peoples independence. It produces information booklets and the magazine MS Matters. Most of the work is done through a network of 362 local branches:
Tel: General Enquiries 0207 610 7171 Helpline: 0207 371 8000; Scotland: 0131 225 3600 Continued on the next page |
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